Patients from a diverse background participated in the study: mean age – 51.37±15.05 years, mean time since first symptoms – 6.01±5.40 years, mean number of solutions tried – 1.90±1.34, with a wide variety in their work backgrounds (homemakers to executive roles), socioeconomic backgrounds, lifestyles (sedentary to athletes), and different geographic locations within the country.
Through various interactions and observations, valuable insights were gained regarding the challenges faced by individuals adhering to pelvic floor exercise routines, frequent clinic visits, reliance on absorbent pads, persistent anxiety about leakage, and limitations such as avoiding bus travel. The strong association of UI with societal stigma was found to lead to various fears in the mind of a patient. Essentially, the patients had the wish to feel free.
Analysis revealed that women working from home or new mothers often manage UI with voiding schedules, while those with private transportation opt for convenient stops, perceiving UI as a problem but not actively seeking solutions. Conversely, women reliant on public transport, office-going new mothers, and those with busy, inflexible schedules – all whose regular lifestyle was severely affected by UI (henceforth referred to as ‘affected women’), were actively trying to solve it. Key factors that affect their choices: uninterrupted routine, ease of use, risk-free nature, cost-effectiveness, and efficacy of the solution.
It was found that 86% of all participants followed solutions recommended by their clinicians. 53% of all affected women were actively looking for an alternative to their current solution despite multiple failed attempts in the past. Others affected had the tendency to lose hope after a point, and to eventually learn to live with UI. Of all participants interviewed, 85% of those who were within 3 years of being diagnosed, were actively looking for a new solution, as compared to 54% of those who were not in the same timeframe.
About 80% of affected women who were under the age of 60 and leading a busy lifestyle (typically pursuing/settled in their career/work and financially independent), were using medication, despite severe side effects, because it was convenient, and gave them an uninterrupted work routine. 93% were not fully satisfied with the choice, but only 67% were actively supplementing it with other methods, like exercising whenever possible, in the hope that they could stop medication sooner.
Affected women within six months of having given birth prioritized their newborn and their post-partum recovery over UI and primarily relied on pads, with few expressing interests in alternative solutions if their condition persisted. About 58% of affected women interviewed above the age of 60 were leading a moderate to active lifestyle and were making attempts at treating their condition. 57% of these were relying on alternative medicine to manage their day-to-day incontinence. Treatment cost was identified as a consideration of more importance for both these groups of women as compared to the young ones having financial independence.