Hypothesis / aims of study
Group-based education (GBE) is an emerging model used by a range of disciplines in healthcare especially to support chronic disease self-management(1–4). GBE provides knowledge and its application in daily life. It empowers patients by reducing their feelings of stigmata and isolation and provides the opportunity to meet others in similar circumstances, learn from them, and develop self-awareness.
We introduced GBE in the pelvic floor unit for patients with defaecatory difficulties where the aim was to educate patients about these disorders and their management, improve patient care by reducing waiting times and allow patients to have access to multi-disciplinary services such as dieticians, physiotherapists, and bowel specialist nurses in one session. Evidence regarding patient experience of GBE sessions for symptoms of defaecatory difficulties is lacking. We share our experience of GBE and patient feedback.
Study design, materials and methods
GBE sessions were held bi-monthly and were offered both in person and online via Microsoft Teams. The sessions included talks by a bowel specialist nurse, Gastrointestinal dietician and pelvic physiotherapist. The bowel specialist nurse educated patients on symptoms of defaecatory disorders, and their first-line management which included dietary advice, bladder and bowel retraining, biofeedback, rectal irrigation and pharmacological therapy. Pelvic physiotherapists discussed the importance of performing pelvic floor exercises (PFE). Participants were shown how to perform PFE and relevant important information about websites and applications available was also provided. The dietician gave an overview about the gut-brain axis, dietary advice, and foods to avoid for managing symptoms better. The talks were interactive and included a question-and-answer session along with discussion among the patients and facilitators. Patients also shared their personal experiences including the impact on quality of life. Patient feedback was collected at the end (paper form or online survey monkey questionnaire).
Interpretation of results
As per patient feedback, GBE provided a safe community where participants were able to talk about taboo subjects with ease and comfort. Interaction and discussion about personal experiences allowed patients to feel that they were ‘not alone’. GBE sessions allowed patients to gain knowledge and interact with others which provided the opportunity to gain self-awareness and learn from each other’s experiences. Listening to each other and self-reflection motivated them to seek treatment. Ability to attend virtually contributed to an increase in participation for patients such as those with social anxiety, having mobility issues, or feeling embarrassed due to symptoms such as anal incontinence. Offering multi-disciplinary service on the day resulted in patients getting a comprehensive management plan and reduced the need for multi-departmental referrals and multiple future appointment visits for the patients.