This is an educational event organised jointly by ERN ITHACA, ERN ERKNet, and ERN eUROGEN. It is aimed at both healthcare professionals and patient organisations.
Damien Sanlaville (ERN ITHACA), from the Service de génétique in the Femme Mère Enfant Hospital in Lyon, France, will provide an introduction to the topic. Following this, Dr. Bruno Ranchin (ERN ERKNet), from the Pediatric Nephrology Department in the Femme Mère Enfant Hospital, will give an overview of the nephrological aspects of the syndrome. Dr. Giovanni Mosiello (ERN eUROGEN), pediatric urologist at the Paediatric Hospital Bambino Gesu in Rome, will then discuss the urological viewpoint before, finally, Dr. Annalisa Scopinaro, President of UNIAMO (the Italian Federation of Rare Diseases), will present views from the patient organisations.
For further details and registration for this webinar please click on the link below.
Register here
eUROGEN is the European Reference Network for rare and complex urorectogenital diseases and conditions. Our multidisciplinary teams of experts are able to diagnose, suggest treatment or surgery, and then provide post-operative and transitional support. We have full members and affiliated partners across the majority of EU Member States.